Comments on: Living Well with Your Feeding Tube http://dmnewman.wordpress.com/2008/05/06/living-well-with-your-feeding-tube/ Battling and beating throat cancer Mon, 07 Dec 2009 20:24:00 +0000 http://wordpress.com/ hourly 1 By: dmnewman http://dmnewman.wordpress.com/2008/05/06/living-well-with-your-feeding-tube/#comment-128 dmnewman Sat, 20 Jun 2009 03:00:05 +0000 http://dmnewman.wordpress.com/?p=55#comment-128 D, Wow, do i understand. i have some of the same issues. she should not feel alone at all. have you searched the various blogs for esophageial or throat cancer? i know there's are some other blogs out there. i will see if i can any and create a link to them. is your mother using a spray moisturizer like oasis when she starts to choke. if my mouth gets dry, i use that or biotine's spray and seem to get immediate relief. all the best. d D, Wow, do i understand. i have some of the same issues. she should not feel alone at all. have you searched the various blogs for esophageial or throat cancer? i know there’s are some other blogs out there. i will see if i can any and create a link to them.
is your mother using a spray moisturizer like oasis when she starts to choke. if my mouth gets dry, i use that or biotine’s spray and seem to get immediate relief. all the best. d

]]> By: D http://dmnewman.wordpress.com/2008/05/06/living-well-with-your-feeding-tube/#comment-127 D Fri, 19 Jun 2009 03:03:22 +0000 http://dmnewman.wordpress.com/?p=55#comment-127 Hello, I can't tell you how happy I am I found this site! My mother had throat cancer 12 years ago and survived it, however from all the radiation she had she has not been able to swallow or eat anything since then. She has been on PEG for 12 years now and though she is used to it and has excepted the fact that she will never swallow again, I think she feels very alone in her situation. She has a lot of trouble with choking on her saliva and some other issues. She is also starting to have panic attacks because she feels as if she is going to choke. I was wondering if anyone knows of any support groups or anyone she can talk to who would understand her situation and can relate to her. I would love to hear if anyone has any suggestions. God Bless, D Hello,

I can’t tell you how happy I am I found this site! My mother had throat cancer 12 years ago and survived it, however from all the radiation she had she has not been able to swallow or eat anything since then. She has been on PEG for 12 years now and though she is used to it and has excepted the fact that she will never swallow again, I think she feels very alone in her situation. She has a lot of trouble with choking on her saliva and some other issues. She is also starting to have panic attacks because she feels as if she is going to choke. I was wondering if anyone knows of any support groups or anyone she can talk to who would understand her situation and can relate to her. I would love to hear if anyone has any suggestions.

God Bless,

D

]]> By: dmnewman http://dmnewman.wordpress.com/2008/05/06/living-well-with-your-feeding-tube/#comment-116 dmnewman Thu, 14 May 2009 04:04:50 +0000 http://dmnewman.wordpress.com/?p=55#comment-116 yea, henry. just the kind of attitude i'm trying to cultivate. there is life after cancer, but sometimes you have to trade something for that wonderful life. not a bad trade is it. thanks for the comments. d yea, henry. just the kind of attitude i’m trying to cultivate. there is life after cancer, but sometimes you have to trade something for that wonderful life. not a bad trade is it. thanks for the comments. d

]]> By: Henry http://dmnewman.wordpress.com/2008/05/06/living-well-with-your-feeding-tube/#comment-115 Henry Wed, 13 May 2009 20:03:23 +0000 http://dmnewman.wordpress.com/?p=55#comment-115 HI to all I have been on PEG tube feeding for 11 years now. Had a neck cancer problem , cured the cancer but could not eat aftefwards, still can't It took me about 6 months to adjust and another year to get things working . For the last 8 years i change my own tube about every 9 months or so. I take 6 plastic bottles (8oz.) of equate 350cal. (walmart) a day and lots o water also V 8 juice at night with some vodka ( i sleep better) My blood pressure is down and my body has adjusted very well. I still work , travel life is still real great and i just keep thinking about all the things that i can still do. God bless Henry HI to all
I have been on PEG tube feeding for 11 years now.
Had a neck cancer problem , cured the cancer but could not eat aftefwards, still can’t
It took me about 6 months to adjust and another year to get things working .
For the last 8 years i change my own tube about every 9 months or so.
I take 6 plastic bottles (8oz.) of equate 350cal. (walmart)
a day and lots o water also V 8 juice at night with some vodka ( i sleep better)
My blood pressure is down and my body has adjusted very well.
I still work , travel life is still real great and i just keep thinking about all the things that i can still do.
God bless
Henry

]]> By: norma http://dmnewman.wordpress.com/2008/05/06/living-well-with-your-feeding-tube/#comment-98 norma Thu, 15 Jan 2009 00:04:19 +0000 http://dmnewman.wordpress.com/?p=55#comment-98 Thanks for the reply I'feeling a lot better since read a lot of blogs both this one and others.A'int computers grand.Hope someday i'll be able to help someone else to face something they find hard to bear feel a little better as you guys have helped me. Thanks for the reply I’feeling a lot better since read a lot of blogs both this one and others.A’int computers grand.Hope someday i’ll be able to help someone else to face something they find hard to bear feel a little better as you guys have helped me.

]]> By: dmnewman http://dmnewman.wordpress.com/2008/05/06/living-well-with-your-feeding-tube/#comment-97 dmnewman Tue, 13 Jan 2009 23:11:37 +0000 http://dmnewman.wordpress.com/?p=55#comment-97 You might want to reply to some of the people who've made suggestions to me. They know some great websites. If there's any way I can help or questions I can answer, I'll be happy to. Once you get used to your tube, you're going to find some real advantanges to being able to eat on the fly (so to speak). And I have some good travel tips too. You might want to reply to some of the people who’ve made suggestions to me. They know some great websites. If there’s any way I can help or questions I can answer, I’ll be happy to. Once you get used to your tube, you’re going to find some real advantanges to being able to eat on the fly (so to speak). And I have some good travel tips too.

]]> By: norma http://dmnewman.wordpress.com/2008/05/06/living-well-with-your-feeding-tube/#comment-96 norma Tue, 13 Jan 2009 22:10:46 +0000 http://dmnewman.wordpress.com/?p=55#comment-96 Hiall I recieved my peg tube ten days ago.I was so glad to find this blog because I have been on an emotional roller coasterever.Frist I think I am so blessed to not have anything worse and the next minite I want to scream "Why me God this is not fair"I know ten days is not long enough to adjust to something so life changeing but just knowing there someeone out there going through the same thing and may be able to give me some much needed tips on some of the things they have learned and maybe some different webs i can go to makes me feel a lot better.Thanks for letting me vent norma Hiall I recieved my peg tube ten days ago.I was so glad to find this blog because I have been on an emotional roller coasterever.Frist I think I am so blessed to not have anything worse and the next minite I want to scream “Why me God this is not fair”I know ten days is not long enough to adjust to something so life changeing but just knowing there someeone out there going through the same thing and may be able to give me some much needed tips on some of the things they have learned and maybe some different webs i can go to makes me feel a lot better.Thanks for letting me vent
norma

]]> By: Baseer Ahmad http://dmnewman.wordpress.com/2008/05/06/living-well-with-your-feeding-tube/#comment-86 Baseer Ahmad Sun, 27 Jul 2008 16:26:54 +0000 http://dmnewman.wordpress.com/?p=55#comment-86 Hi. I am a medical resident, and so I have a fair understanding of the mechanics and surgical placements of PEGs. Recently, I found out that someone I know has a PEG, and suddenly it felt much more personal for me. So, I wanted to find out beyond the medical side of things what it feels like from a patient's point of view to live with a PEG. Thank you for your honest and concise description. I wish you all the best, and I admire people like you who face adversity with such stoicism. Hi.

I am a medical resident, and so I have a fair understanding of the mechanics and surgical placements of PEGs.

Recently, I found out that someone I know has a PEG, and suddenly it felt much more personal for me. So, I wanted to find out beyond the medical side of things what it feels like from a patient’s point of view to live with a PEG.

Thank you for your honest and concise description. I wish you all the best, and I admire people like you who face adversity with such stoicism.

]]> By: Chris http://dmnewman.wordpress.com/2008/05/06/living-well-with-your-feeding-tube/#comment-68 Chris Mon, 19 May 2008 08:54:10 +0000 http://dmnewman.wordpress.com/?p=55#comment-68 Hello from another PEG fed adult with a well established blog about enteral feeding! I am sorry to hear you say your tube will never become your friend! My blog will show another side to the story! Hope you will read it and stay in touch. Oh and not everybody who is tube fed can have a blenderized diet. There are literally hundreds of reasons for tube feeding and many need the prescription only nutrition. Wishing you well. Chris Hello from another PEG fed adult with a well established blog about enteral feeding!

I am sorry to hear you say your tube will never become your friend! My blog will show another side to the story!

Hope you will read it and stay in touch.

Oh and not everybody who is tube fed can have a blenderized diet. There are literally hundreds of reasons for tube feeding and many need the prescription only nutrition.

Wishing you well. Chris

]]> By: dmnewman http://dmnewman.wordpress.com/2008/05/06/living-well-with-your-feeding-tube/#comment-54 dmnewman Sat, 17 May 2008 15:31:44 +0000 http://dmnewman.wordpress.com/?p=55#comment-54 Jenny, Thank you. This is exactly the kind of information I want left on this blog. My cancer care was outstanding, but the after care left something to be desired. Really, really short on after care options. You have just save me a ton of money. Thank you. Dot Jenny, Thank you. This is exactly the kind of information I want left on this blog. My cancer care was outstanding, but the after care left something to be desired. Really, really short on after care options. You have just save me a ton of money. Thank you. Dot

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